Where it all began.....

On Monday the 25th of March our precious little Sophie was officially diagnosed with Stage IV High Risk Neuroblastoma .

Welcome to Sophie's blog posts. This space is dedicated to sharing Sophie's journey (good and not so good) and providing information as to how you can assist with Sophie's future treatment.

On Friday 22nd of March a visit to the GP saw us being sent down to Emergency at the Women's and Children's Hospital. Sophie had a growth in the back of her throat that had developed over several weeks, had 2 black eyes in a month and was having regular blood noses. I packed an overnight bag as my motherly instinct and nursing background had me suspecting the worst. We got to emergency and were taken straight through for assessment and bloods to be taken. By late that night her bloods had been reviewed and the Emergency doctor was telling us that Sophie either had cancer or an infection. She left and I burst into tears. She hadn't had a temperature in weeks, so I knew it wasn't an infection. We were transferred to a ward for the night. The next day Sophie had a CT scan and chest x-ray to get further information. By Saturday evening I had been in the hospital with Sophie for over 24hrs and had to get home to Hannah. The doctors came round to speak to us but I was already home. Matt and the medical team conference called me in and we learnt that Sophie most likely had a childhood cancer called Neuroblastoma.

Let's start with 'What is Neuroblastoma'?

We are often asked what 'neuroblastoma' is.

Let's start with the name: * neuro = nerves * blastoma = a cancer that affects immature or developing cells.

So, neuroblastomas are cancers that start in early nerve cells (called neuroblasts) of the sympathetic nervous system.

This means that tumours can be found anywhere along this system; most commonly in the adrenal glands (above the kidney), or near the spine, chest, neck or pelvis. Rarely, a neuroblastoma has spread so widely by the time it is found, doctors can’t tell exactly where it started.

Some neuroblastomas grow and spread quickly, while others grow slowly.

For more information visit the American Cancer Society on the link below for the full article on which our definition above is based:…/n…/about/what-is-neuroblastoma.html

We gratefully acknowledge the American Society of Clinical Oncology Cancer.Net for permission to use the image below.

Content provided by Neuroblastoma Australia is of a general nature only. Any medical queries should be directed to your oncologist or medical team.



Thank you

to everyone who contributed, volunteered & attended
Sophie's Family Fun Day on Saturday 16 November at Federation Park GUMERACHA!
Your generous contributions helped us raise

If you want to be part of future fundraising events,
contact us at



rare cancers Australia

Saturday 16 November

Federation Park, Gumeracha! 




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