5 November 2019 Sophie's very grumpy today and I can't say I blame her. She was pulled out of bed at 6.15am to come to hospital and has had to have her CVC dressing change done and a nasogastric tube inserted. She's stopped eating and will likely develop mucositis in the next 24-48 hours, so the nasogastric tube will allow us to keep her hydrated. We're heading home in an hour or so and will be ready to rush her back in when she spikes a fever or shows signs of mucositis. Hopefully she recovers quicker than last time. I'm already missing her smiles.
5 November 2019 Sophie's stem cells went back into her at 10.30 this morning. There was lots of planning by the nurses and lab staff for something that goes into her body within a 10 minute time frame. Sophie now smells like creamed corn 🌽 from the preservative that the cells are stored in and will do for a few days. Lucky she's a cutie. Sophie's neutrophil count is now nearly zero, so the stem cells are to help her body produce new cells. This process takes 8-21 days to take place, so Sophie will likely get sicker before she starts to improve.
6 November 2019 Lasted 18 hours at home. Sophie's back in hospital with a fever and the beginning of mucositis as expected.