The journey begins......
No child or parent should have to go through this, however we feel it's necessary to share Sophie's treatment journal so everyone gains an understanding of the challenges ahead.
Sophie bloated up like a puffer fish but with lots of stories and cuddles from loved ones, she got through cycle 1 of chemo. On Saturday 6th of April Sophie finally gets to go home. We have to give her daily subcutaneous medication to encourage white cell growth and present back at the hospital in a few days to see if blood levels are high enough to undergo stem cell retrieval.
Monday the 8th of April we go in fasting to see if Sophie's levels are high enough and they aren't, so we eat and head home. Wednesday Matt takes Sophie in and her levels are surprisingly high enough. She's transferred to paediatric ICU and intubated before I can even get there. By the time I get there the amazing team of staff are setting up ready to retrieve Sophie's stem cells. The first day they retrieve a level of just over 3 out of the level 10 they hope to get. Sophie remains incubated overnight and we head home to spend time with Hannah and get some rest. The following day they retrieve more stem cells and send them to the lab. We wait anxiously to hear if they have enough and Sophie can be woken up. At 4.30 we get the news that they have a level over 11 and that Sophie can be woken up.