Unfortunately Sophie has become as unwell as she was after her last high dose chemo and stem cell transplant. She has terrible mucositis that is being managed with IV pain relief. Her temperature has been elevated for about 6 days so she is currently have a CT scan to rule out a few things. She is miserable and there is no hint of her smile. It's heartbreaking having to just wait around for her cell counts to come up and for her to improve 😢
Cancer is very good at getting in the way of fun things. Cancer Sucks! Sophie is still in hospital and too unwell to attend her family fun day tomorrow, but the show must go on. We must keep working towards getting her to New York. Our family are so touched by the amazing love and support we have received from so many people and we know Sophie will be too when she's old enough to understand. We are sad that Sophie and Matt will be unable to make it tomorrow but her big sister Hannah and I look forward to seeing you all there.